Control afectivo y satisfacción con la vida en talasémicos

Control afectivo y satisfacción con la vida en talasémicos

Antecedentes: La Talasemia es una enfermedad crónica que puede conducir a un impacto en el funcionamiento psicológico y el comportamiento social de los pacientes. Sin embargo, todavía se sabe poco sobre los aspectos psicológicos específicos de esta enfermedad, tales como el grado de tensión, satisfacción con la vida y el control afectivo, sobre todo en pacientes adultos.Objetivo: El propósito de este estudio, es investigar si los pacientes con Talasemia tienen un patrón psicológico específico relacionado con las dimensiones de tensión, la satisfacción, calidad de vida y el manejo del afecto.Método: 31 pacientes con Talasemia mayor e intermedia fueron evaluados: (19 mujeres y 12 hombres) con edades entre 18 y 50 años (M= 34+16), pertenecient... Ver más

Guardado en:

International Journal of Psychological Research

2011-2084

2011-7922

Salpietro, Carmelo

Settineri, Salvatore

Moschella, Emanuela

Rigoli, Luciana

Vento, Roberta

Rizzo, Amelia

Piraino, Basilia

Mento, Carmela

UNIVERSIDAD DE SAN BUENAVENTURA

10.21500/20112084.648

8

2015-01-01

91

98

Colombia

calidad de vida

control afectivo

talasemia

http://purl.org/coar/access_right/c_abf2

info:eu-repo/semantics/openAccess

International Journal of Psychological Research - 2015

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spelling Control afectivo y satisfacción con la vida en talasémicos
Antecedentes: La Talasemia es una enfermedad crónica que puede conducir a un impacto en el funcionamiento psicológico y el comportamiento social de los pacientes. Sin embargo, todavía se sabe poco sobre los aspectos psicológicos específicos de esta enfermedad, tales como el grado de tensión, satisfacción con la vida y el control afectivo, sobre todo en pacientes adultos.Objetivo: El propósito de este estudio, es investigar si los pacientes con Talasemia tienen un patrón psicológico específico relacionado con las dimensiones de tensión, la satisfacción, calidad de vida y el manejo del afecto.Método: 31 pacientes con Talasemia mayor e intermedia fueron evaluados: (19 mujeres y 12 hombres) con edades entre 18 y 50 años (M= 34+16), pertenecientes a la Unidad de Complejo de Genética Médica. Para la evaluación fueron utilizados el Perfil de Estados de Ánimo (POMS), la calidad de vida: Satisfacción y placer (Q-LES-Q) y el test de Rorschach.Resultados: Los resultados muestran una relación inversa entre los niveles de tensión de auto-reporte y los indicadores de control afectivo en el test de Rorschach. La satisfacción con la vida, por el contrario parece variar según la gravedad de la enfermedad: major vs. intermedio - y el tipo de terapia.Conclusiones: la comprensión de los mecanismos psicológicos implicados en la talasemia, tanto en el auto-reporte como en lo proyectivo, puede contribuir a una toma de control más amplia del paciente, considerando los aspectos subjetivos relacionados con el bienestar psicológico y socio-emocional, fundamentales en el cumplimiento del cuidado.
Control afectivo y satisfacción con la vida en talasémicos
Artículo de revista
calidad de vida
control afectivo
talasemia
McNair, D. M., Lorr, M., & Droppleman, L. F. (1971). POMS: profile of mood states. Educational and Industrial Testing Service: San Diego.
Pakbaz Z, Treadwell M, Yamashita R, Quirolo K, Foote D, Quill L, Singer T, Vichinsky EP (2005) Quality of Life in Patients with Thalassaemia Intermedia Compared to Thalassaemia Major. New York Academy of Sciences 1054 (1) 457-461.
Messina, G., Colombo, E., Cassinerio, E., Ferri, F., Curti, R., Altamura, C., & Cappellini, M. D. (2008). Psychosocial aspects and psychiatric disorders in young adult with thalassemia major. Internal and emergency medicine, 3(4), 339-343.
Messina, G., Colombo, E., Cassinerio, E., Cesaretti, C., Marcon, A., Zanaboni, L., Baldini M., Cappellini, M. D. (2010). Pregnant women affected by thalassemia major: a controlled study of traits and personality. Journal of research in medical sciences 15 (2), 100-106.
Mento C., Galletti F., Galletti B., Longo P., Bitto E., Rizzo A., & Settineri S. (2014). Representation, Projection and Cochlear Implant: a single case study. Mediterranean Journal of Clinical Psychology, vol. 2 n. 1.
Maggio, A., Giambona, A., Cai, S. P., Wall, J., Kan, Y. W., & Chehab, F. F. (1993). Rapid and simultaneous typing of hemoglobin S, hemoglobin C, and seven Mediterranean beta-thalassemia mutations by covalent reverse dot-blot analysis: application to prenatal diagnosis in Sicily. Blood, 81(1), 239-242.
Marzo, R. D., Dowling, C. E., Wong, C., Maggio, A., & Kazazian, H. H. (1988). The spectrum of β‐thalassaemia mutations in Sicily. British journal of haematology, 69(3), 393-397.
Passi Tognazzo, D. (1994). Il Metodo Rorschach, Manuale di psicodiagnostica su modelli di matrice europea. Firenze: Giunti Editore.
Jian-zhong, Z. H. O. U. (2003). The Cultural Connotation of Orchid and its Orientation of Personality in Confucianism. Southeast Culture, 7, 009.
Guasco, G., La Mantia, A., & Cuniolo, A. (1986). [Psychological problems of thalassemic subjects]. La Pediatria medica e chirurgica: Medical and surgical pediatrics,9(3), 269-279.
Goldfarb, W. (1945). The Animal Symbol in the Rorschach Test, and an Animal Association Test. Rorschach Research Exchange, 9(1), 8-22.
Mento et al. (2014) int.j.psychol.res. 8 (1) PP. 91 - 98
INTERNATIONAL JOURNAL OF PSYCHOLOGICAL RESEARCH Affective control and life satisfaction in Thalassemia
R E S E A R C H
Galanello, R., & Origa, R. (2010). Review: Beta-thalassemia. Orphanet J Rare Dis, 5(11).
Palma, A., Vullo, C., Zani, B., & Facchini, A. (1998). Psychosocial integration of adolescents and young adults with thalassemia major. Annals of the New York Academy of Sciences, 850(1), 355-360.
Sandler, J. (Ed.). (2012). Projection, identification, projective identification. Karnac Books.
Powell, W. N., Rodarte, J. G., & Neel, J. V. (1950). The occurrence in a family of Sicilian ancestry of the traits for both sickling and thalassemia. Blood,5(10), 887-897.
Zani, B., Di Palma, A., & Vullo, C. (1995). Psychosocial aspects of chronic illness in adolescents with thalassaemia major. Journal of adolescence, 18(4), 387-402.
Text
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http://purl.org/coar/version/c_970fb48d4fbd8a85
info:eu-repo/semantics/publishedVersion
http://purl.org/coar/resource_type/c_6501
info:eu-repo/semantics/article
Weatherall, D. J., & Clegg, J. B. (2008). The thalassaemia syndromes. John Wiley & Sons.
Rorschach, H. (1927). Rorschach Test – Psychodiagnostic Plates. Cambridge, MA: Hogrefe Publishing
Tsiantis, J., Dragonas, T. H., Richardson, C., Anastasopoulos, D., Masera, G., & Spinetta, J. (1996). Psychosocial problems and adjustment of children with β-thalassemia and their families. European child & adolescent psychiatry,5(4), 193-203.
Telfer, P., Constantinidou, G., Andreou, P., Christou, S., Modell, B., & Angastiniotis, M. (2005). Quality of life in thalassemia. Annals of the New York Academy of Sciences, 1054(1), 273-282.
Shaligram, D., Girimaji, S. C., & Chaturvedi, S. K. (2007). Psychological problems and quality of life in children with thalassemia. The Indian Journal of Pediatrics, 74(8), 727-730.
Settineri S., Lo Presti E., Liotta M. and Mento C. (2013). Trauma and the Father Image: Fantasies and Complexes in the Rorschach Test. The Open Psychology Journal vol. 6 p. 1-5.
Sandler, J., & Ackner, B. (1951). Rorschach content analysis: an experimental investigation. British Journal of Medical Psychology,24(3), 180-201.
Dumitrascu, N. (2011). The Impact of Induced Mood on Visual Information Processing. The University Of Toledo.
Rose, T., Kaser-Boyd, N., & Maloney, M. P. (2001). Essentials of Rorschach Assessment. Essentials of Psychological Assessment Series. John Wiley & Sons, Inc., 605 Third Avenue, New York, NY 10158.
Endicott, J., Nee, J., Harrison, W., & Blumenthal, R. (1993). Quality of life enjoyment and satisfaction questionnaire. Psychopharmacol Bull, 29(2), 321-326.
Bohm, E. (1958). A textbook in Rorschach diagnosis. New York: Grune & Stratton.
Daar, S., & Pathare, A. V. (2006). Combined therapy with desferrioxamine and deferiprone in beta thalassemia major patients with transfusional iron overload. Annals of hematology, 85(5), 315-319.
Salpietro, Carmelo
1
8
quality of Life
affective control
thalassaemia
Settineri, Salvatore
Moschella, Emanuela
Carbone, S. (2014). Thalassemia in Messina: a sociological approach to chronic disease. Thalassemia Reports, 4(1).
Rigoli, Luciana
Vento, Roberta
Rizzo, Amelia
Piraino, Basilia
Mento, Carmela
Background. Thalassemia is a chronic disease that can lead to an impact on psychological functioning and social behavior of patients. However, still little is known about the specific psychological aspects of the disease, such as the degree of tension, life satisfaction and affective control, especially in adult patients.Aim. The purpose of this study is to investigate whether patients with thalassemia have specific psychological pattern relating to the dimensions of tension, satisfaction and quality of life, management of affection.Method. We evaluated 31 patients with thalassemia major and intermedia (19 women and 12 men) aged between 18 and 50 years (M = 34 + 16), belonging to the Complex Unit of Medical Genetics. For the evaluation were used the Profile of Mood States (POMS), the Quality of Life Enjoyment and Satisfaction Questionnaire (Q-LES-Q) and the Rorschach test.Results. The findings show an inverse relationship between the levels of self-reported tension and the affective control indicators at Rorschach. Life satisfaction, instead, seems to vary according to the severity of the disease - major vs. intermediate - and the type of therapy.Conclusions. An understanding of the psychological mechanisms involved in thalassemia, both self-reported and projective, can contribute to a wider patient take-over, by considering the subjective aspects related to the psychological and socio-emotional well-being, fundamental in the care compliance.
Journal article
Publication
application/pdf
Universidad San Buenaventura - USB (Colombia)
Bornstein, R. F., Bowers, K. S., & Bonner, S. (1996). Effects of induced mood states on objective and projective dependency scores. Journal of Personality Assessment, 67(2), 324-340.
Birgens, H., & Ljung, R. (2007). The thalassaemia syndromes. Scandinavian journal of clinical & laboratory investigation, 67(1), 11-26.
Aydin, B., Yaprak, I., Akarsu, D., Ökten, N., & Ülgen, M. (1997). Psychosocial aspects and psychiatric disorders in children with thalassemia major. Pediatrics International, 39(3), 354-357.
Anie, K. A., & Massaglia, P. (2001). Psychological therapies for thalassaemia. Cochrane Database Syst Rev 3.
International Journal of Psychological Research - 2015
https://creativecommons.org/licenses/by-nc-sa/4.0/
Inglés
International Journal of Psychological Research
https://revistas.usb.edu.co/index.php/IJPR/article/view/648
https://doi.org/10.21500/20112084.648
10.21500/20112084.648
https://revistas.usb.edu.co/index.php/IJPR/article/download/648/448
2011-7922
91
98
2011-2084
2015-01-01T00:00:00Z
2015-01-01T00:00:00Z
2015-01-01
institution UNIVERSIDAD DE SAN BUENAVENTURA
thumbnail https://nuevo.metarevistas.org/UNIVERSIDADDESANBUENAVENTURA_COLOMBIA/logo.png
country_str Colombia
collection International Journal of Psychological Research
title Control afectivo y satisfacción con la vida en talasémicos
spellingShingle Control afectivo y satisfacción con la vida en talasémicos
Salpietro, Carmelo
Settineri, Salvatore
Moschella, Emanuela
Rigoli, Luciana
Vento, Roberta
Rizzo, Amelia
Piraino, Basilia
Mento, Carmela
calidad de vida
control afectivo
talasemia
quality of Life
affective control
thalassaemia
title_short Control afectivo y satisfacción con la vida en talasémicos
title_full Control afectivo y satisfacción con la vida en talasémicos
title_fullStr Control afectivo y satisfacción con la vida en talasémicos
title_full_unstemmed Control afectivo y satisfacción con la vida en talasémicos
title_sort control afectivo y satisfacción con la vida en talasémicos
description Antecedentes: La Talasemia es una enfermedad crónica que puede conducir a un impacto en el funcionamiento psicológico y el comportamiento social de los pacientes. Sin embargo, todavía se sabe poco sobre los aspectos psicológicos específicos de esta enfermedad, tales como el grado de tensión, satisfacción con la vida y el control afectivo, sobre todo en pacientes adultos.Objetivo: El propósito de este estudio, es investigar si los pacientes con Talasemia tienen un patrón psicológico específico relacionado con las dimensiones de tensión, la satisfacción, calidad de vida y el manejo del afecto.Método: 31 pacientes con Talasemia mayor e intermedia fueron evaluados: (19 mujeres y 12 hombres) con edades entre 18 y 50 años (M= 34+16), pertenecientes a la Unidad de Complejo de Genética Médica. Para la evaluación fueron utilizados el Perfil de Estados de Ánimo (POMS), la calidad de vida: Satisfacción y placer (Q-LES-Q) y el test de Rorschach.Resultados: Los resultados muestran una relación inversa entre los niveles de tensión de auto-reporte y los indicadores de control afectivo en el test de Rorschach. La satisfacción con la vida, por el contrario parece variar según la gravedad de la enfermedad: major vs. intermedio - y el tipo de terapia.Conclusiones: la comprensión de los mecanismos psicológicos implicados en la talasemia, tanto en el auto-reporte como en lo proyectivo, puede contribuir a una toma de control más amplia del paciente, considerando los aspectos subjetivos relacionados con el bienestar psicológico y socio-emocional, fundamentales en el cumplimiento del cuidado.
description_eng Background. Thalassemia is a chronic disease that can lead to an impact on psychological functioning and social behavior of patients. However, still little is known about the specific psychological aspects of the disease, such as the degree of tension, life satisfaction and affective control, especially in adult patients.Aim. The purpose of this study is to investigate whether patients with thalassemia have specific psychological pattern relating to the dimensions of tension, satisfaction and quality of life, management of affection.Method. We evaluated 31 patients with thalassemia major and intermedia (19 women and 12 men) aged between 18 and 50 years (M = 34 + 16), belonging to the Complex Unit of Medical Genetics. For the evaluation were used the Profile of Mood States (POMS), the Quality of Life Enjoyment and Satisfaction Questionnaire (Q-LES-Q) and the Rorschach test.Results. The findings show an inverse relationship between the levels of self-reported tension and the affective control indicators at Rorschach. Life satisfaction, instead, seems to vary according to the severity of the disease - major vs. intermediate - and the type of therapy.Conclusions. An understanding of the psychological mechanisms involved in thalassemia, both self-reported and projective, can contribute to a wider patient take-over, by considering the subjective aspects related to the psychological and socio-emotional well-being, fundamental in the care compliance.
author Salpietro, Carmelo
Settineri, Salvatore
Moschella, Emanuela
Rigoli, Luciana
Vento, Roberta
Rizzo, Amelia
Piraino, Basilia
Mento, Carmela
author_facet Salpietro, Carmelo
Settineri, Salvatore
Moschella, Emanuela
Rigoli, Luciana
Vento, Roberta
Rizzo, Amelia
Piraino, Basilia
Mento, Carmela
topicspa_str_mv calidad de vida
control afectivo
talasemia
topic calidad de vida
control afectivo
talasemia
quality of Life
affective control
thalassaemia
topic_facet calidad de vida
control afectivo
talasemia
quality of Life
affective control
thalassaemia
citationvolume 8
citationissue 1
publisher Universidad San Buenaventura - USB (Colombia)
ispartofjournal International Journal of Psychological Research
source https://revistas.usb.edu.co/index.php/IJPR/article/view/648
language Inglés
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rights http://purl.org/coar/access_right/c_abf2
info:eu-repo/semantics/openAccess
International Journal of Psychological Research - 2015
https://creativecommons.org/licenses/by-nc-sa/4.0/
references_eng McNair, D. M., Lorr, M., & Droppleman, L. F. (1971). POMS: profile of mood states. Educational and Industrial Testing Service: San Diego.
Pakbaz Z, Treadwell M, Yamashita R, Quirolo K, Foote D, Quill L, Singer T, Vichinsky EP (2005) Quality of Life in Patients with Thalassaemia Intermedia Compared to Thalassaemia Major. New York Academy of Sciences 1054 (1) 457-461.
Messina, G., Colombo, E., Cassinerio, E., Ferri, F., Curti, R., Altamura, C., & Cappellini, M. D. (2008). Psychosocial aspects and psychiatric disorders in young adult with thalassemia major. Internal and emergency medicine, 3(4), 339-343.
Messina, G., Colombo, E., Cassinerio, E., Cesaretti, C., Marcon, A., Zanaboni, L., Baldini M., Cappellini, M. D. (2010). Pregnant women affected by thalassemia major: a controlled study of traits and personality. Journal of research in medical sciences 15 (2), 100-106.
Mento C., Galletti F., Galletti B., Longo P., Bitto E., Rizzo A., & Settineri S. (2014). Representation, Projection and Cochlear Implant: a single case study. Mediterranean Journal of Clinical Psychology, vol. 2 n. 1.
Maggio, A., Giambona, A., Cai, S. P., Wall, J., Kan, Y. W., & Chehab, F. F. (1993). Rapid and simultaneous typing of hemoglobin S, hemoglobin C, and seven Mediterranean beta-thalassemia mutations by covalent reverse dot-blot analysis: application to prenatal diagnosis in Sicily. Blood, 81(1), 239-242.
Marzo, R. D., Dowling, C. E., Wong, C., Maggio, A., & Kazazian, H. H. (1988). The spectrum of β‐thalassaemia mutations in Sicily. British journal of haematology, 69(3), 393-397.
Passi Tognazzo, D. (1994). Il Metodo Rorschach, Manuale di psicodiagnostica su modelli di matrice europea. Firenze: Giunti Editore.
Jian-zhong, Z. H. O. U. (2003). The Cultural Connotation of Orchid and its Orientation of Personality in Confucianism. Southeast Culture, 7, 009.
Guasco, G., La Mantia, A., & Cuniolo, A. (1986). [Psychological problems of thalassemic subjects]. La Pediatria medica e chirurgica: Medical and surgical pediatrics,9(3), 269-279.
Goldfarb, W. (1945). The Animal Symbol in the Rorschach Test, and an Animal Association Test. Rorschach Research Exchange, 9(1), 8-22.
Mento et al. (2014) int.j.psychol.res. 8 (1) PP. 91 - 98
INTERNATIONAL JOURNAL OF PSYCHOLOGICAL RESEARCH Affective control and life satisfaction in Thalassemia
R E S E A R C H
Galanello, R., & Origa, R. (2010). Review: Beta-thalassemia. Orphanet J Rare Dis, 5(11).
Palma, A., Vullo, C., Zani, B., & Facchini, A. (1998). Psychosocial integration of adolescents and young adults with thalassemia major. Annals of the New York Academy of Sciences, 850(1), 355-360.
Sandler, J. (Ed.). (2012). Projection, identification, projective identification. Karnac Books.
Powell, W. N., Rodarte, J. G., & Neel, J. V. (1950). The occurrence in a family of Sicilian ancestry of the traits for both sickling and thalassemia. Blood,5(10), 887-897.
Zani, B., Di Palma, A., & Vullo, C. (1995). Psychosocial aspects of chronic illness in adolescents with thalassaemia major. Journal of adolescence, 18(4), 387-402.
Weatherall, D. J., & Clegg, J. B. (2008). The thalassaemia syndromes. John Wiley & Sons.
Rorschach, H. (1927). Rorschach Test – Psychodiagnostic Plates. Cambridge, MA: Hogrefe Publishing
Tsiantis, J., Dragonas, T. H., Richardson, C., Anastasopoulos, D., Masera, G., & Spinetta, J. (1996). Psychosocial problems and adjustment of children with β-thalassemia and their families. European child & adolescent psychiatry,5(4), 193-203.
Telfer, P., Constantinidou, G., Andreou, P., Christou, S., Modell, B., & Angastiniotis, M. (2005). Quality of life in thalassemia. Annals of the New York Academy of Sciences, 1054(1), 273-282.
Shaligram, D., Girimaji, S. C., & Chaturvedi, S. K. (2007). Psychological problems and quality of life in children with thalassemia. The Indian Journal of Pediatrics, 74(8), 727-730.
Settineri S., Lo Presti E., Liotta M. and Mento C. (2013). Trauma and the Father Image: Fantasies and Complexes in the Rorschach Test. The Open Psychology Journal vol. 6 p. 1-5.
Sandler, J., & Ackner, B. (1951). Rorschach content analysis: an experimental investigation. British Journal of Medical Psychology,24(3), 180-201.
Dumitrascu, N. (2011). The Impact of Induced Mood on Visual Information Processing. The University Of Toledo.
Rose, T., Kaser-Boyd, N., & Maloney, M. P. (2001). Essentials of Rorschach Assessment. Essentials of Psychological Assessment Series. John Wiley & Sons, Inc., 605 Third Avenue, New York, NY 10158.
Endicott, J., Nee, J., Harrison, W., & Blumenthal, R. (1993). Quality of life enjoyment and satisfaction questionnaire. Psychopharmacol Bull, 29(2), 321-326.
Bohm, E. (1958). A textbook in Rorschach diagnosis. New York: Grune & Stratton.
Daar, S., & Pathare, A. V. (2006). Combined therapy with desferrioxamine and deferiprone in beta thalassemia major patients with transfusional iron overload. Annals of hematology, 85(5), 315-319.
Carbone, S. (2014). Thalassemia in Messina: a sociological approach to chronic disease. Thalassemia Reports, 4(1).
Bornstein, R. F., Bowers, K. S., & Bonner, S. (1996). Effects of induced mood states on objective and projective dependency scores. Journal of Personality Assessment, 67(2), 324-340.
Birgens, H., & Ljung, R. (2007). The thalassaemia syndromes. Scandinavian journal of clinical & laboratory investigation, 67(1), 11-26.
Aydin, B., Yaprak, I., Akarsu, D., Ökten, N., & Ülgen, M. (1997). Psychosocial aspects and psychiatric disorders in children with thalassemia major. Pediatrics International, 39(3), 354-357.
Anie, K. A., & Massaglia, P. (2001). Psychological therapies for thalassaemia. Cochrane Database Syst Rev 3.
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